'Not something to be played around with': Manitoba family struggles after son diagnosed with rare urinary condition
A Manitoba mom wants other parents to know about a rare urinary tract condition her son was born with that she had never heard of.
Today Ashley Luby’s fourteen-month old son, Fox Chia, is active and doing well but as a newborn he had back-to-back urinary tract infections.
Luby said it was during a second hospital week-long stay when more tests found something was wrong.
"We also determined that he had a distended bladder. So his bladder was thickened which was an indication that his output wasn't happening very easily at all," she said.
This was when she first heard the term "PUV," short for posterior urethral valves.
The condition causes boys to be born with an extra flap of tissue in their urethra, which can stop urination or make it hard to urinate.
"I really want parents to know that this condition exists because it will have life-long consequences if it is not diagnosed in your child," said Luby.
Many PUV cases are found on prenatal ultrasounds, but Fox's case wasn't found until after birth.
Shared Health said the severity of the condition depends on the damage done to the bladder or kidneys, adding some PUV cases are mild with no long-term issues.
“Others never have normal bladder function and may require a kidney transplant when older. These children are followed by both pediatric urology and pediatric nephrology,” read part of a statement by a Shared Health spokesperson.
It said 1 to 3 PUV surgeries are performed each year in Manitoba and most cases are done within six weeks.
Luby told CTV News there is permanent damage to Fox’s bladder and he will likely need specialized care for the rest of his life.
"It's not something to be played around with," she said.
Fox had corrective surgery and was on preventative antibiotics until recently.
"If you have a little boy, and he gets a UTI, that requires investigation immediately," said Luby, who is now working to raise money for research and awareness for PUV and other congenital abnormalities of the kidney and urinary tract.
She also wants more widespread testing for PUV so more cases can be caught early.
CTVNews.ca Top Stories
'Cybersecurity incident' shuts down London Drugs stores across Western Canada
All 79 locations of pharmacy and retail chain London Drugs were shut down Sunday after it was the victim of a “cybersecurity incident.”
CDC says it's identified 1st documented cases of HIV transmitted through cosmetic needles
Three women diagnosed with HIV after getting 'vampire facial' procedures at an unlicensed medical spa are believed to be the first documented cases of people contracting the virus through a cosmetic procedure using needles.
Canucks pull off comeback, top Predators 4-3 in OT
Elias Lindholm scored 1:02 into overtime and the Vancouver Canucks came all the way back to beat the Nashville Predators 4-3 in Game 4 of their first-round playoff series on Sunday.
Deadly six-vehicle crash on Highway 400 sparked by road rage incident
One person was killed in a six-vehicle crash on Highway 400 in Innisfil Friday evening.
Aerial photos show wide devastation left by a deadly tornado in China's Guangzhou
Aerial photos posted by Chinese state media on Sunday showed wide devastation in part of the southern city of Guangzhou after a tornado swept through the day before, killing five people, injuring dozens others and damaging more than 140 buildings.
Ontario to ban use of cellphones in school classrooms starting in September
Ontario is introducing a suite of measures that will crack down on cellphone use and vaping in schools.
Australian prime minister describes domestic violence as a 'national crisis' after protests
Australia's Prime Minister Anthony Albanese on Monday described domestic violence as a 'national crisis' after thousands rallied around the country against violence toward women.
Casey DeSmith won’t start Game 4 for the Canucks
Rookie goalie Arturs Silovs will start in net for the Vancouver Canucks when they face the Nashville Predators in Game 4 of their first-round playoff series Sunday.
Putin likely didn't order death of Russian opposition leader Navalny, U.S. official says
U.S. intelligence officials have determined that Russian President Vladimir Putin likely didn't order the death of imprisoned opposition leader Alexei Navalny in February, according to an official familiar with the determination.